On Friday morning, Professor Barbara Prainsack, Professor Ilona Kickbusch, and Seliem El-Sayed launched the Data Solidarity Glossary at a special breakfast event during the European Health Forum Gastein (EHFG). Following opening words from Professor Kickbusch, Professor Prainsack delivered a brief presentation outlining the core principles of the data solidarity framework, its necessity, and upcoming developments. Seliem El-Sayed followed with a demonstration of PLUTO (Public Value Assessment Tool), which provides a structured approach to evaluating the public value of data use. After the presentations, an open discussion took place, during which several topics were raised, including: the definition of public value, managing risks in health data governance, benefit sharing and balancing privacy concerns.

The Data Solidarity Glossary is now available online! It is intended to promote a better understanding of data solidarity and its relationship to other governance approaches. It starts with a clarification of key terms that are central to the data solidarity approach. It then moves on to a discussion of concepts that are related to data solidarity, both in the sense that they refer to related practices, or in that they may be confused with data solidarity. The discussion of related concepts focuses both on a basic definition of these concepts and on clarifying their relation to data solidarity.